State or Country of residence: Florida
Quinolone taken: Floxin, Cipro, Levaquin
Reason for the Quinolone: Kidney Stone
Was a safer antibiotic tried first? : No
How long ago did you take the Quinolone?: 3 Years, 8 Months
How much have you recovered as of now?: 10%
How often do you relapse or cycle?: Ongoing for over three and one half years
Does your doctor agree the Quinolone is the cause of your problems?: Yes
Do you have a history of seizures or neurological problems?: No
Please list anything your doctor did that helped in your recovery: Nothing other than moral support. According to the doctors (over a dozen of them) there is nothing that can be done to fix this.
What has helped you in your recovery?: supplements,
vitamins, physical therapy, participating in support groups, narcotic pain
killers and research
Due to ongoing litigation I can only state that there was absolutely NO REASON for me to be given these drugs. Basically, the doctors ignored the clinical manifestation of the severe adverse reactions and continue to prescribe stronger fluoroquinolones. The combination of the fluoroquinolones and NSAIDS resulted in severe CNS reactions and several visits to the ER. The only medical problem I had was a kidney stone which was misdiagnosis as first a bladder infection and then prostatitis. I had neither; I had NO bacterial infection at all.
The end result is I now have severe joint and tendon pain, loss of hearing, loss of vision and permanent double vision, non functioning tear ducts, severe dental decay including teeth breaking and falling out of my mouth, severe rash, damage to my liver, kidneys and heart, a degree of drug induced brain damage, crippled hands, severe insomnia, accelerated aging and the list goes on and on and on and on. I manage to continue to work only as the result of the pain killers and shear determination.
As to quality of life that is a joke, I have no life to speak of. I cannot eat, I cannot sleep, I am severely depressed, and I cannot remember what it was like to go one day without pain. Everything I once enjoyed is physically impossible to do.
Financially I cannot even begin to total up how much this has cost me. Suffice to say that I have had to cash in my life savings just to pay the bills. Fortunately my children are all grown and living on their own so it is just my wife and I who have had to deal with this day in and day out. But even a simple thing like walking around the mall window-shopping is impossible to do. We survive this endless nightmare one-minute at a time.
I have been under continuing medical care and the bottom line is there is not a damn thing they can do to fix this. Time is the only answer. Depressing as this may sound I have lost all hope of ever recovering and I am envious of those who have been so fortunate. I have learned to accept the fact that my life as I once knew it to be, for all practical purposes, is over.
These drugs, beyond any possibility of repair, have ravaged my body, my mind and my spirit. I am now a blind (for all practical purposes), bitter, crippled, and decrypted old man who survives on shear tenacity, one moment at a time. I have aged fifty years in the past three and one half. The only thing that keeps me hanging on is the fact that I am not alone.
Our name is legions and one day the damage these drugs can and will do will
become common knowledge and I intend to live long enough to see that day
arrive, in spite of what these drugs have done to me and others. I am one
of the luckier ones, in spite of my injuries, as I have lived to tell my
story; far too many others have not. It has been stated that “dead men tell
no stories” but those of us who continue to survive must tell ours. (I
cannot tell my complete story, as I would like to, as everything I say can
and will be used against me in a court of law to deny my claim). Screw’ em.
Even though I have been bound hand and foot by opposing counsel this is my
story in one sentence. A life destroyed by the careless and thoughtless use
of a “nuclear bomb” of an antibiotic.
Last Updated 4/29/04