State or Country of residence: MI, USA
Quinolone taken: Avelox
Reason for the Quinolone: Possible infection in bladder or pelvic region
Was a safer antibiotic tried first? : No
How long did you take the Quinolone for? : 7 Months
How long ago did you take the Quinolone?: I took one dose/had reaction within 30 minutes
How much have you recovered as of now?: Less than 10%
How often do you relapse or cycle?: Unsure. maybe relapsing at 7 months
Does your doctor agree the Quinolone is the cause of your problems?: No
Do you have a history of seizures or neurological problems?: No
Please list anything your doctor did that helped in your
recovery: Prescribed anti-anxiety meds that make me sleepy. I weaned
myself off one (Ativan) for three months. And I missed two doses of the other
(buspar) and I'm back where I was before I started the meds. (I'd missed doses
before and never had a problem) It helps to suppress the symptoms only, not
What has helped you in your recovery?: Well, lots of
visual stimulation doesn't help. I've tried cleansing internally in a variety of
ways to no avail.
|Started 30 minutes after my first dose (I may
have taken this med before but this was my first dose this time) with severe
muscle contractions all over and I couldn't walk right and I was having a
hard time breathing. I thought I was having a stroke. I went by ambulance to
the ER where the contractions got worse.
The doctor gave me Benedryl and morphine to ease the contractions and block a possible allergic reaction. He said it was definitely the antibiotic Avelox and to never take it again. He also said I had adverse psychotic reaction (which my doctor found to be really strange) it kept on going to develop verbal tics and moments of partial and fleeting paralysis, weakening of the body in general, causing me to slump over when I walked at times.
I continued with the muscle contractions or tics as they called them until I was stabilized with the meds. I started with Benedryl and Ativan soon followed, then Buspar was added and Benedryl was removed. This left me with occasional tics and occasional times were I would still feel trembly or like I may have a seizure-an unreal feeling?-where it would be occasionally worse but usually better.
I no longer had problems walking. Until June 11th I missed two doses of meds and I'm back where I was in the beginning month. This time I do almost fall when my whole body wants to give out on me , my legs go limp and I'm ticcing verbally and physically all the time. Its easing up with my meds back on track, but this weekend was painful with the muscles contracting.
I've been off work now since Sunday, I had to call off. I was off two months the first time. My husbands lost work because he has to take me to work ad doctor appointments when not doing well, I'm sleepy all the time no matter how much sleep I get. I had ache joints before, so its hard to tell the difference between now and before, but my shoulders have been especially ache. I am going to work tomorrow but I wont be able to drive and that is something I need to do, and my legs are still giving out on me.
Last Updated 6/15/04