Name: Linda B.
State or Country of residence: U.S.A.
Quinolone taken: Levaquin
Reason for the Quinolone: Infected ingrown toenail
Was a safer antibiotic tried first? : No
How long did you take the Quinolone for? : 10 Days
How long ago did you take the Quinolone?: First week of April, 2004
How much have you recovered as of now?: Less than 10%
Does your doctor agree the Quinolone is the cause of your problems?: No
Do you have a history of seizures or neurological problems?: No
Please list anything your doctor did that helped in your recovery: Nothing. I have seen three doctors ( my primary care general practitioner, a cardiologist, and my rheumatologist. They had no suggestions for treatment for my situation.
What has helped you in your recovery?: Nothing has
helped. The symptoms are still here.
Linda B's Story
|I took Levaquin, 500 mg., for ten days during
the first week of April 2004.
On day 10 I experienced severe pain in my right hand, elbow, shoulder, both knees, right ankle, and started with episodes of irregular heartbeats.
I tried ice bags, Tylenol ( the only pain reliever I can take), and rest. I stayed home from work for one day. I checked on the internet for adverse reactions to Levaquin and found that my symptoms matched. The prescription information said to contact my doctor immediately.
I called the podiatrist who had prescribed the Levaquin, and he said that he "had never heard of such a reaction." I asked him what I could do, and he had no answer. I then called my internist and got an appointment for the following week. My internist was skeptical at first, but he did verify that I had tendonitis in my arm. He had no idea what to do. I went to my rheumatologist two weeks later. He also had no suggestions other than to try taking steroids. I said I would wait. I went home and checked websites and information from others who have had adverse reactions and found that steroids could create more problems.
I was tested for lyme disease and inflammation. Both tests were negative. My rheumatologist had no other ideas or advice. I went to a cardiologist to have the irregular heartbeat checked. On that day the irregular beat was not present and the electrocardiogram showed no evidence of a problem. (The irregular heartbeat comes and goes- sometimes lasting for weeks at a time.)
I have tried Milk of Magnesia, Maalox, Tums, vitamins, and a healthy diet (with plenty of protein). Nothing seems to make a difference. I did have a few days when the symptoms lessened, but they keep coming back. Three months later: my arms still hurt, my legs start aching when I walk more then a block, some days I ache all over, and my irregular heartbeat seems back to stay. I refuse to let this stop my "normal" life. I keep working and try to rest when I can. I can't carry anything heavy. I spend many sleepless nights due to pain and the irregular heartbeat.
I have spent countless hours on the internet to find any ideas on how to remove this "poison" from my body. Financially, I have paid for doctor's visits (co-pays) and if I try some alternative therapies such as acupuncture, my medical insurance will not cover the costs.
Last Updated 7/12/04